Thursday, June 9, 2016

It's Something I Pray About....


Yesterday started out normal enough. I woke up, showered, did my hair.. Nothing unusual. Then, I got a phone call that literally devastated my soul. Bare with me as I write this. This blog post is going to get slightly personal and possibly emotional.
Kyler Daniel. Baby boy, I love you so much. 
When Noel, Kyler's mom, my sister,  found out she was pregnant, I was there. I followed her pregnancy the whole time. And, although we didn't see each other as much as I could have hoped, I felt a connection to Kyler from day one. I even helped to pick this baby's name. The day he was born I knew he would change my life. He has became such a big part of my world in such a little time. It was apparent that he would be my comfort. 
There were days that Noel would call me, Kyler had been up all night and he was so fussy. I would go over just to hold him. He would look at me and get so quiet. Maybe I'm his comfort, too. 
Kyler had a blood test taken not to long ago. Two days ago, I got a phone call from his mom saying the results were in and something wasn't right. She had to go the next day to speak with the doctor about the results. I was so distraught. I barely slept that night. 
Yesterday, I got the phone call that could come very close to the worse call I've ever received. Kyler's test showed that he either has Cystic Fibrosis or carries the gene that causes it. Now, this could go one of two ways. If he HAS CF then he will have life long problems. But, if he carries the gene he could quite possibly go his entire life without a symptom one. If he has the gene but doesn't actually have CF and he marries someone with the gene, his child has a higher chance of  having CF. 
I can not image how Noel feels at this moment. I know that I myself am lost. I guess all I can do is pray that things go okay when he goes to Children's Hospital for more testing. I don't know what I would do without him in my life. I have grown so attached to that sweet baby. I feel like a piece of my heart is missing when I'm not with him. 
For the ones of you actually reading this, I promise to update as soon as I know more. Everyone please just keep Kyler, his family, and my heart in your thoughts. This could be a long journey for us.
-Chaos

BB loves you so much Nay Bug!



No comments:

Post a Comment